Too tired to function..

It's been a busy week, well its always busy it seems..but this one was particularly busy. Gage had is usual sessions, Speech Therapy, Special Instruction and OT. So my days are usually full from that alone because the first two come 4 times a week and OT is twice. They want to bump him up to 5 times a week for the first two. I dont know if we are going to do it or not yet..as it is there are no days off. I tried to get a day off but with scheduling conflicts it didnt happen. I know Gage needs the therapy and it is helping alot..but 5 times a week! The poor kid can never have a play date or just go anywhere. I feel so guilty that I never bring Gage anywhere. He needs socialization with other kids his age so badly. A typical day goes like this:

Wake up anywhere from 8:30-9:00 (unless its Friday, they he wakes up at 7:45)
Krystal(SI teacher) comes from 9:30-10:15
Breakfast(if he doesnt eat when Krystal is here)
Usually play/watch Little Einsteins for a little bit so he has some down time after therapy
Get changed/dressed..if I'm feeling froggy he gets a morning bath
Maribeth(OT) comes from 12-12:45
Tony(speech) comes depending on the day around 1-2
Lunch is fit in between therapy
Nap (this kid naps from like 1:30/2:00 until sometimes almost 5!)(if he doesnt get his "full" nap there is hell to pay)
After nap usually he wakes up, plays a little more
Dinner
A little more playtime
Bed


When I can, which isnt always I fit in times to go here and there..but not usually. Now writing this down it seems like I have more time than I think to do things..but it never follows how I put it down here. In between all of that I have to find time to clean, get myself ready, laundry(which always gets forgotten), plus whatever for the day.

It gets tiring..I can only imagine how Gage feels. I dont think we can do 5 times a week. I want Gage to gave a day to sleep in. I usually cant get him to sleep before 10:30pm..I know, thats late..and with such a long nap it would explain it. Without that nap though, Gage is miserable..and when baby isnt happy, NO one is happy. Plus..sometimes I sneak one with him :) I have woken him up early from his naps, but it takes him almost 45 minutes just to wake up if I wake him up early. So, it really defeats the purpose.

I feel like we both need one day to make appointments, play dates, sleep in, just whatever we want to do that day. The weekends are too hard because nothing is open(like business stuff/doctors) so that doesnt work..Plus sometimes he has sessions on Saturdays.

Oh the good side though, therapy is going really well for Gage. I think he is thriving. Just in the past month he is doing alot more. Just the other day he asked me "Why?". It was adorable. He is getting goofier by the day, which those of you that know Gage know he was already pretty goofy. He has been particularly attached to me this past week. It makes me wonder how he will be when I go to visit Brittany in Long Island in April. I'll be gone from the 9th-13th. It'll be odd to be away, but I think I need the vacation. I never go anywhere or do anything. I cant with Gage's schedule. Everyday his schedule is different..the example I gave is just an average Monday. Tuesday-Friday are all different. I cant wait to go to Chinatown! Purses here I come!!! :)

Gage has his 6 month evaluation on friday. This eval. is for Early Intervention..they see how he is doing and if his services get bumped up or taken away. I already know he is eligible to get bumped up..but I want to know what they think of his progress. In April we go down to Albany to get evaluated again by the pediatric psychologist(or whatever she is) to see how he is progressing. This is the doctor that first diagnosed him. Shes a little odd to say the least, she doesnt hold her tongue for anyone. Very to the point and blunt. Luckily I havent had a run in with her yet..she hasnt been rude...yet. I have heard stories though. I really am interested to see what she says about him. Of course I am sure she doesnt take into consideration that he is 2 1/2, she is a stranger and we drove over 2 hours to go see her. Because you know a 2 hour car ride wont make a kid cranky at all...note the sarcasm. I think no matter what though, Justin, me, Gage's therapist and family see the changes in him. We know he is progressing and thats what matters.

Oh! I almost forgot! So yesterday was busy, busy, busy! Gage had a doctors appointment after his special instruction session..so I busted butt to get us ready and there for 10:40. Gage is getting tested for certain food allergies. Hes getting tested for allergies to milk, wheat and he is getting a test for Celiac. I carry the gene for Celiac so he could inherit it from me(lucky Gage). Now I know alot of stomach problems seem to go hand in hand with Autism(or so I have been told) but I have enough issues with stomach problems that it could be genetic too. So I am seeing what is going on before I do anything. He is getting ALOT of gas problems and I hate to see him in pain anymore. Plus his skin is so dry, the doctor said its eczema but he also said milk allergy can cause that. Of course I wont be bringing him to get is blood drawn, that will be Justin's job. There is NO way I could do that. I could cry and because I used to draw blood myself, I would be really annoyed if things were not done just right with my little man. So its best for all involved that I wait in the car and then come swooping in for the hugs and kisses.

So thats all really for now. I am working on cleaning this house and getting it organized..its going to take forever. Mostly because I am working at turtle(I like Turtles!) speed but also because I am fitting in organizing and cleaning where I can during the day.

I dont have all my pictures set here yet..but here is one from St. Patricks Day..